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Wednesday, February 27, 2008

Update on Smiley

This post involves the medical condition/academic evaluation of Smiley; if that doesn't interest you, kindly skip it. I hate reading about medical conditions just about as much as I hated writing this one,  so I'll understand.

A very confusing day regarding Smiley:

We had an in-home visit by a cognitive researcher, whatever that is, to determine how much his hearing problems have inhibited his learning. That was what I was told the visit was about, but in actuality it also seemed to judge his overall learning potential and intelligence.

Basically the lady showed up, plopped herself down on my living room rug and ran Smiley through a series of tests. He took to her quickly and seemed at ease. He did well at first but within a few minutes seemed to lose his way.  

According to the woman's vernacular he acted according to his 'own agenda'.

The results are confusing, with Lisa coming away with a more positive outlook than I did, and both of us drawing different conclusions from the same statements.

Overall he tested at average to slightly below average learning ability, although the researcher admitted his attention span played a role in that verdict. She termed his attention span very low but did not slap a label on it, having made clear that ADD is in her opinion 'very over diagnosed' in children. She admitted some of it could just be due to an 'off' day, and some could be because he has yet to be exposed to an organized classroom.

She said he was very behind on his speech and could not put two words together, whereas by his age he should (at a minimum) be putting 3 or 4 together.

She deemed him in need of medical/therapeutic 'intervention'. We asked if it was something that, left untreated, would have cleared up by itself so that he was 'normal' by YaYa's age.

"Oh, no," she said. "He needs some help"

Remember that Montessori school we were so happy he was accepted into? The researcher, although she has no say in it, said it was completely the wrong environment for him. If he bounces back enough to attend in the fall she recommended a different, more structured classroom setting.

Here's an odd thing: she told us to forget about toilet training. She said it went hand in hand with his speech development and that it would be taken care of by any educational program he was put in over the summer.

That was my interpretation: Lisa believes it to be more positive, pointing to the fact that even given his attention span today he ranked as 'average' or close to it and seemed to do well on many of the tests, esp. those involving building. She also points out that he was able to ID many items and colors and followed decently complicated directions.

"You're just upset that he isn't a Danny," Lisa said later. "But that isn't the end of the world. He'll be fine."

The speech pathologist was supposed to do her gig today too but rescheduled for tomorrow afternoon, which SUCKS, as I'd cleared today's schedule and had obligations Thursday.

Then, while on the road, Lisa called me. She was upset because a different cognitive researcher had called and said she would attend the speech evaluation tomorrow. Apparently woman #1 called her and recommended a second opinion based on some questionable 'test results'.

A whole lot of confusion and questions errupted. In response woman #1 called back and reitterated that she evaluates potential, whearas the second woman checks current ability.

Seems redundant, given I can't imagine they use different tests, but whatever. I'm begining to distrust the process in my conservative core; the 'welfare state' is rarely your ally.

But we'll see what the folks tomorrow say, and then what the big panel review on next Wednesday deems the best course of action.

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6 comments:

Anonymous said...

well..in my honest opinion...
I think it's very hard to gauge a child's abilities in ONE session, it could be an off day.  If he hasn't been set down before to 'be tested' then he could be just taking it as play...and at that age, regardless of any disorders, most children have a VERY limited attention span.  

It's my opinion that the montessori school (if i'm correct in assuming it's similar to the one here, like a preschool/daycare for youngsters but in a private school setting) would be good.  Social interaction has a lot to do with this type of progression.  We learn a lot from mimicking our peers.  It might be beneficial just to start conversing and be around children closer to his speech level.  A toddler has a better chance understanding him than an adult expecting proper grammar and annunciation.  Maybe even getting him into a story group at the local library or something.  I'm willing to bet that he knows a lot more than he can convey with words.

and FYI...my little girl is definitely not like me academically.  It took me a while to stop expecting her to come home with straight A's...but she excels at so many things that I never did.   What first made me frustrated, now makes me proud...and it's admirable, she has to work so much harder than I did..but she never gives up.

eek.  that was long.  
have a good one~
~Bernadette

Anonymous said...

Well said, Bernadette

One time of being tested isn't enought and I do think things will work out ok....and for now, a "welfare state" is better than no help....so I don't agree with you that..

It will be ok...

Jeanne

Anonymous said...

I don't think one lady testing the poor little guy one time is enough. From what I've seen of him in your blog he is a happy little boy. No too kids mature at the same rate, and now that he can hear better I'm betting he will catch up verbally. It always bothers me when they rate kids as average, below average or above average. Let 'em all learn at their own rate ;)  AND, just because he isn't good at what 'they' think he is, doesn't mean that he won't have his own strengths elsewhere! Just because he doesn't 'verbalize' like they say he should doesn't mean he won't be an artist and see the world in a way that 'they' can't.

I say Hug him, Love him, and let him be Smiley!

Anonymous said...

It is such a worry when any of our children appear to be a bit slower than others, and then we begin to imagine all sorts of things and begin to ask "experts" which is right thing in a way..but I truly believe that the "expert" is usually MUM or DAD whoever is with the child most of the time. A mother knows by instinct so Dan please don't worry to much you are doing your very best for our wee Smiley and I will keep you all in my prayers for some better results during the weeks ahead. and after all is said and done even if he is a bit slower than others  does it really matter...rememeber the tortoise and the hare !  Love Sybl xx

Anonymous said...

Oh boy, this is really tough on you.  It is diffiult to hear the negative about our children and it is even more difficult to hear it from someone who doesn't know our child and certainly we don't know.

Hang tough.  If your health insurance allows it -- go get your own opinion at an area children's hospital.  

More importantly -- trust your own instincts.  

Anonymous said...

I feel for you...and listen to your gut. ;)  C.